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New research institute to explore end-of-life issues


The University of Toronto and the University Health Network have announced that they are launching a new institute dedicated to one of the most fraught areas of medicine: how we handle death and dying.

The Global Institute for Psychosocial, Palliative and End-of-Life Care (GIPPEC) will focus on interdisciplinary research, bringing together medical experts along with academics in subjects ranging from religion to law, to work collaboratively on what is not just a medical issue, but a growing subject of public interest and policy.

"What happened in the history of medicine is that as medicine became more specialized and technical, many of the aspects that had to do with control of physical symptoms, psychological symptoms, end of life care, fell off the radar," explains Dr. Gary Rodin, who will serve as the new institute's director. At one point those matters, he says, "would have been part of expertise of generalists, but as doctors became more focused on organ systems and diseases…palliative care emerged to fill that void."

That growing field isn't sufficient, however, to tackle the numerous and complex questions faced by those grappling with end-of-life issues.

"Many of the questions are broader questions than can be answered by medicine alone," Rodin continues, "including withdrawal of care, assisted suicide, and resource distribution—not just medical issues. A whole variety of disciplines…are needed to address these issues."

There are investigators in a variety of disciplines working on various aspects of these questions, and one of the institute's main goals is to bring them together so they can share their insights and work collaboratively.

Given than many of the laws, regulations, and procedures which shape end-of-life decisions are made by politicians and courts, rather than decided by physicians, another of the institute's major goals will be to "provide at least scholarly opinion to inform the public debate we think that's been lacking. There's a lot of emotion around [these issues] but not a lot of research."

This is also why Rodin is planning a significant programming element: there will be a series of talks, as well as a large annual conference that includes both professional and public components.

The institute will have its formal inauguration in October, and will be up and running within the next year. It will include a core staff of about half a dozen, and will have numerous Canadian and international researchers contributing part-time.

Writer: Hamutal Dotan
Source: Dr. Gary Rodin, Director, Global Institute for Psychosocial, Palliative and End-of-Life Care
Photo: The Princess Margaret Cancer Centre and the University Health Network
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